“Disability doesn’t make you exceptional, but questioning what you think you know about it does.”
A transcript of the video is available on the Ted Talk Website in 35 languages
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As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:
“Disability” is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Mask up, love one another, and stay alive for one more week.
Learning to unmask is hard. I am so tired.
i lost my ability to mask at all like a year or two ago and man it’s been awful
Level 1 Autism Diagnosis and I only found out I had it like, halfway through last year. Turns out it wasn’t only ADHD and powering through it for like 30 years takes its toll. It was a hell of a ride to get diagnosed too. Expensive and painful.
Thank you for the hug
im still waiting on being assessed, most places won’t do it because I also have dissassociative symptoms? but i at least live in a country with free assessments. the wait list is just like, 3-4 years…
but yea i did pr much the same thing. my shock when i can’t work hard through all of life’s problems
What does unmasking mean? I’ve heard the term a lot but I don’t know how I would even begin to do it
From what I understand, masking is the process of someone on the spectrum trying to seem like they are not on the spectrum. Masking is the process of trying to blend in with neurotypical people, which takes up a lot of energy throughout each day and leaves a lot of neurodivergent people permanently exhausted (sometimes even in burnout). The masking process can originate from multiple sources, ranging from a personal desire not to be seen as “different” and to “just fit in” to others expecting of neurodivergent people to “just act normal”. This can take many shapes, not all of them are abusive, but what it ultimately leads to is a difficulty in being yourself, or a dissociative state where neurodivergent people do not know who they actually are.
(If anyone has a better explanation and/or would like to correct me, please do so!)
4·1 month agounmasking is the process of someone on the spectrum trying to seem like they are not on the spectrum.
I think you made a mistake.
ⓘ This user is suspected of being a cat. Please report any suspicious behavior.
Oh shit yes, sorry!
Well my upcoming foot surgery has been cancelled. The government are cancelling 140K surgeries so the NHS can save money.
Apart from the fact that this is dehumanizing to no end, is there anything else you can do to get help with your feet?
I have some creams on prescription to try and keep it under control. It’s not as bad as it was previously, the previous surgeries have removed a lot of the problem. It’s just it could spread.
The very premise of The Good Doctor is so insulting “Can a mildly disabled person do a normal person job? We bravely stand up for the idea that a chosen few of them just might!”
Someone retracted a (very informal, nothing on paper yet) “job” offer (A short term research thing) after finding out about my disability because they couldn’t accommodate it. This is the first time something like this has happened.
I think this is actually illegal but I’ve learned my lesson about sending in complaints. No sir, not me.
I remember not getting an exchange year because of my disability when I was at uni, so I understand how fucked up this is. I’m sorry the job offer was retracted, especially since I don’t understand how “accommodation” couldn’t be handled. Like, isn’t that one of those things you can talk about when you get a job? Or am I too naive in that regard?
I understand the not wanting to complain anymore, but I think it was the right thing to do. Someone violated your privacy, and that should be punished in some sense. Hang in there, Keld, and I’m sorry you were let down
Image description: A post by Trisha Greenhalgh #FBPE in dialog form:
Doctor: Don’t confuse your Google search with my 6y at medical school.
Patient: Don’t confuse the 1-hour lecture you had on my condition with my 20y of living with it.
Got my urine test results back today. There is no UTI but the symptoms are as bad as ever. The nurse said it must be irritable bladder syndrome. I’ve begged to be referred to a urologist before but was refused. I guess I just live like this.
Denialism
MY friend James died. He was a marvelous beam of sunlight. This song i’ve put together is meant to simulate him jovially lifting me out of some depressive pit. Rest in peace Jimbo
sorry for your loss.
I found a YouTube link in your comment. Here are links to the same video on alternative frontends that protect your privacy:
Got my charger sorted thanks to help from here. I cancelled my appointment about possibly getting a hysterectomy. My bladder is still bad, the doctor prescribed more drugs but the listed side effects are terrible, I’m not going to take them. Now my eczema has flared up very badly on my hands it’s driving me mad. My really good E45 eczema cream got discontinued. The zerobase the doctor prescribed in its place is rubbish. My hands are red, cracked and so itchy now. E45 have put out a new eczema cream but it’s expensive and doesn’t seem to be available on the NHS. Oh well, that’s capitalism for you. The things that work are expensive and inaccessible to the masses.
On page 5 of the document I made for why I think I have ADHD, there’s still a lot more I could share but I hope I have enough examples.
I’m fine with not actually having it but I legitimately need help for my attention issues and it would be kinda validating that the suffering I’ve experienced my entire life isnt entirely a skill issue
I really did not give a single shit about doing homework until like freshman year of high school and even then I remember just outright not turning in 2 projects for this one class that year
I know things suck more often than not, but know that you are loved and that you matter. Stay beautiful, comrades.
<3
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I’m feeling so overwhelmed right now. Not only do I have this long lasting allergic reaction on top of all my other medical issues, but I need help buying things and I wasn’t getting a response to my last two mutual aid posts. Actually deleted them as after days of no response it just seemed pointless and I’m worried if I ask for help too much people will get sick of me. On top of all this the house is an absolute state. When I was in receipt of disability benefits my landlady and I would go halves on a cleaner once a fortnight. This is because we’re both disabled and struggle to do things like bend/crouch down, lift heavy things etc. So things like scrubbing the shower floor, hoovering, etc are basically impossible. We haven’t had a cleaner in such a long time due to our financial issues that it’s got to the stage that we’re actually living in filth. The shower floor is orange and brown, with black mould everywhere, the carpet is a state and this is the tip of the iceberg. It’s obviously a health hazard too with my compromised immunity. I asked the local council if they could provide help on the grounds that we’re disabled and poor, but they said there are so many people needing help now that the level of disability you must have to qualify is just through the roof. I used to pay for a carer too to help me with basic things like getting dressed properly but couldn’t afford that any more when my benefits were stopped. So I haven’t even been properly dressed in ages, can’t put a bra on, can only get into very stretchy trousers like viscose leggings, can only get baggy t shirts on, and really struggle to put my shoes on. It’s ridiculous that disabled people struggle to get care in a 21st century first world country.
Its unfathomable that people still insist disability benefits and accommodations are used by “lazy people” who want to be pampered and live the easy life.
My allergic reaction is getting worse. It got so bad today I had to get treatment at the local medical centre. They prescribed oral meds (more side effects now probably) and a cream which doesn’t seem to be doing anything. My left hand swelled up, my skin has gone crusty and I’m covered in red welts, spots and streaks all over my upper body. I feel really under the weather from this and being dosed up to the eyeballs on meds.
I’m so sorry love
Did you get an appointment with the GP yet? I really hope you don’t get the skin condition on top of the side effects. It’s bad enough as it is.Thank you.
No, I only got to see a nurse practitioner. Now my throat is really scratchy and sore too, which is apparently another side effect. I feel just awful, I can barely do anything.
Pretty cool that no dentists offices take new patients with my states shitty privatized medicaid dental plan. I haven’t been to the dentist in 8 years
I hope this is allowed to post on a megathread but does anyone have recommendations for window AC units? I’m willing to spend up to $400 because summer is absolutely miserable in humid and hot as fuck Wisconsin. Whatever will keep my room the coolest, reduces humidity, lasts decently long, and isn’t super loud. I take a lot of medication that fucks with my heat regulation, so even 70° feels sweltering to me, and I don’t have central air here
https://www.rtings.com/air-conditioner/reviews/best/window
this site is the GOAT since they buy all their stuff independently.
