I have the suicide disease. The worse, TN2 version. That is not a sly term for mental illness, it’s a nerve disorder that has pain so great that people kill themselves rather than face yet another day of it. I am rarely below 3 on the 1-10 pain scale (at 4 right now) and I’ve reached 10 more times than I can count. This is with medication keeping it at the level where I can function.
I am such a bad judge of pain that the trauma from my not realizing for half a week that I had kidney stones and not taking any painkillers and then being stuck first in a clinic and then the ER for 14 hours writing in agony until they finally decided I did, in fact, have kidney stones and gave me some fentanyl, caused severe trauma and gave me an eating disorder called ARFID, unrelated to body image issues, and I have not eaten solid food in a year and a half.
P.S. If you try to give me medical advice over the internet, I may just block you. I am so fucking sick of that. And no, “I know you said you didn’t want medical advice, but…” does not count as a way around that. And I am fucking sick of having to say that and having people ignore it too.
That’s a raw deal. I always thought a 1-10 pain scale was a dumb Idea. Pain is pretty subjective and someone who hasn’t experienced severe pain doesn’t really have a way to understand what constitutes a 10. (I would answer differently before and after my cycling accident for example) Personally I think that setting the scale as 1-10 where breaking a leg is a 6 (or something) would be more diagnostically relevant. I trust your judgement, although what you call a 4 would probably be most people’s 8.
Damn. You know flying squid, I’ve always looked up to you around here. I see you in a lot of posts and comments around and didn’t realize you are in agony for most of the time.
I wondered how things were for you. I’m so sorry. I do know of a new treatment for trigeminal nerve stuff simply because I work in neuro I can tell you about if you want but I most certainly won’t give you advice. I just know someone who is using it and it’s new.
I’m here to try something different… Instead of recommending a medical thing, how about you go on https://loops.video/ and share it with the rest of the world?
I have the suicide disease. The worse, TN2 version. That is not a sly term for mental illness, it’s a nerve disorder that has pain so great that people kill themselves rather than face yet another day of it. I am rarely below 3 on the 1-10 pain scale (at 4 right now) and I’ve reached 10 more times than I can count. This is with medication keeping it at the level where I can function.
I am such a bad judge of pain that the trauma from my not realizing for half a week that I had kidney stones and not taking any painkillers and then being stuck first in a clinic and then the ER for 14 hours writing in agony until they finally decided I did, in fact, have kidney stones and gave me some fentanyl, caused severe trauma and gave me an eating disorder called ARFID, unrelated to body image issues, and I have not eaten solid food in a year and a half.
Explains a lot, doesn’t it?
https://arizonapain.com/trigeminal-neuralgia-suicide-disease/
https://en.wikipedia.org/wiki/Avoidant/restrictive_food_intake_disorder
Hey, you asked.
P.S. If you try to give me medical advice over the internet, I may just block you. I am so fucking sick of that. And no, “I know you said you didn’t want medical advice, but…” does not count as a way around that. And I am fucking sick of having to say that and having people ignore it too.
That’s a raw deal. I always thought a 1-10 pain scale was a dumb Idea. Pain is pretty subjective and someone who hasn’t experienced severe pain doesn’t really have a way to understand what constitutes a 10. (I would answer differently before and after my cycling accident for example) Personally I think that setting the scale as 1-10 where breaking a leg is a 6 (or something) would be more diagnostically relevant. I trust your judgement, although what you call a 4 would probably be most people’s 8.
Damn, so sorry you’re having to go through this. May the days be kind to you, friend.
Thank you.
That must be the toughest condition I read about in a long while. It’s amazing that you kept going. It’s also amazing that you decided to share this!
Thanks. I have definitely had my very, very low points, but you just try to keep going when you can until you have no reason to do it anymore…
Damn. You know flying squid, I’ve always looked up to you around here. I see you in a lot of posts and comments around and didn’t realize you are in agony for most of the time.
Yeah, gotta love it.
I wondered how things were for you. I’m so sorry. I do know of a new treatment for trigeminal nerve stuff simply because I work in neuro I can tell you about if you want but I most certainly won’t give you advice. I just know someone who is using it and it’s new.
I appreciate it, but I have good people I am working with.
Ok all good. Hope you get some relief soon.
Thanks.
I’m here to try something different… Instead of recommending a medical thing, how about you go on https://loops.video/ and share it with the rest of the world?
Shit, that’s some crazy symptoms! Fight on!
I actually did make a video about it once which has helped others, so I’m glad of that. But I don’t want to doxx myself and link to it.
Damn, that blows. Thanks for sharing, I didn’t know that was a thing.